Bookworm Transcripts
Search
About
59: Being Mortal by Atul Gawande
00:00:00
It's a question of the day, Mike. How's Scrum doing?
00:00:03
Scrum is not happening. No.
00:00:06
Well, as we were talking about before we hit the red button,
00:00:10
basically since we recorded the last episode, which has been a while,
00:00:14
we've had a couple of issues. Your internet got knocked out. I had to travel.
00:00:18
I really haven't done anything with my OmniFocus.
00:00:25
So confession time. I confess this on the latest episode of Free Agents that we recorded as well.
00:00:30
I feel a little bit like a productivity hypocrite because I find myself in this place where I don't
00:00:36
even think about the things that I have to do and then select the most important thing.
00:00:41
I don't even know everything that I need to do. All I know is that I need to get this course
00:00:47
off the ground and I know what the next thing is. And so I do the next thing and then I see two
00:00:52
more things that I need to do. And I'm just in the thick of it right now.
00:00:57
I told David when we recorded, I'm telling all of you right now that this is not a normal state for
00:01:02
me. I'm not going to stay here. But over the holidays, I'm going to take some time off and
00:01:08
we're going to hit the reset button and everything's going to be back the way it's supposed to be.
00:01:12
My email is going to be back under control. I'm not going to have 700 unread messages anymore.
00:01:18
Yeah, the wheels have basically fallen off, but it's been good because I have been able to make
00:01:24
some significant progress. And as we're recording this, I actually launched my personal retreat course
00:01:29
yesterday. So things are moving in the right direction. Hopefully we can get these things
00:01:36
kind of moving on their own and I don't have to babysit them so much. And then we can kind of take
00:01:41
a step back breathe and reevaluate the systems. But for now, it's a little bit crazy in Mike's world.
00:01:47
So right scrum and omni focus was not going to happen this time.
00:01:50
Happens sometimes. Yeah, how about you? Well, it's worth a shot though, right? You know,
00:01:57
these things happen. You had the same thing. You're going to do a personal scrum setup. Did you
00:02:01
succeed? Yeah, I've been running it. It's been going pretty well for me. I feel like it's been a
00:02:08
pretty good balance of getting the planning for the week ahead nailed down and then basically
00:02:15
having a way of knowing, am I doing like, am I planning to do more than I can handle? Like,
00:02:20
that's a lot of what the big pieces are there. So I found it extremely helpful. I'm going to keep
00:02:27
doing it, but I will say that you having the break from it for a little while, like that sometimes
00:02:34
has to happen when you've got a lot going on one project, because it seems like you can
00:02:42
just go heads down on the project and it's more work than it's worth to constantly be add things
00:02:47
and then check them off Adam and check them off. Yep. It seems to get to where it's too much sometimes.
00:02:51
So yes, I feel like it's sometimes you have to step away from it at times. So I'm not in that spot
00:02:58
right now, but I'm in the middle of a transition work wise. Like, we did the episode on free agents.
00:03:06
We're talking about free agents a lot today already, but free agents. We did that episode
00:03:10
about how I'm leaving free agency to go work for a corporation. Well, that's going to be happening
00:03:15
next week pending paperwork at the moment. So yeah, there's a lot going on there, which means that
00:03:23
the whole scrum thing has been very well flexed lately trying to help me keep that under control.
00:03:31
So yes, I'm still definitely in the thick of it and it's been going pretty well. So I'm happy with it.
00:03:38
Nice. You said something at the beginning of that along the lines of scrum has helped you
00:03:45
identify how much you could actually do. Yes. And I'm not kidding when I say like, it's been crazy
00:03:53
busy. I feel like if I would have done that, I would have recognized that I've got twice as much
00:03:58
to do as I can possibly do. And then it's like, well, oh, well, figure out a way to do it.
00:04:03
On Monday, just as an example, I edited, exported, uploaded and published all 10 videos for the
00:04:13
personal retreat course. I created half of the workbook pages. So there were like five or six
00:04:19
designs that I had to get done that day. I talked to you and you helped me spin up a discourse
00:04:25
forum associated with the site. I decided to host a goal setting workshop. So I signed up for
00:04:32
webinar platform, integrated it with my email marketing, and then created the landing page
00:04:36
in the event for all of that. Like, it's been ridiculous. I get done and I journal at the end
00:04:41
of the day and I like, what did you accomplish? It's like a week's worth of work. But I know it's
00:04:49
not sustainable. So I know I got to stop revving the engine so hard pretty soon. But right now,
00:04:55
it's just you do what you got to do. Yeah. Which interestingly, you know, we've talked about
00:05:01
for agents a lot this episode, David and I made an announcement on the episode that went live
00:05:05
as we were recording this yesterday that we're pivoting the show and we're going to talk a lot
00:05:09
more about productivity, but from a different perspective and a more authentic perspective,
00:05:15
I think it's going to be rebranded as focused. And it's going to be a productivity podcast about
00:05:20
more than cranking widgets. It's going to be talking about intentionality and sharing a lot of
00:05:26
the struggles and the mistakes that we make, which is something that is missing in the productivity
00:05:30
space a lot of times. You see that the experts quote unquote, you know, Sharon, this, these are
00:05:35
the three things you got to do to reclaim 10 hours a week, whatever. And so my hope is that it's going
00:05:41
to be refreshing in the productivity podcast space because it's going to be a little bit different
00:05:47
approach to we're still going to dive deep on some of the topics and share the things that we learn.
00:05:51
You can apply them to your life and hopefully improve your life that way. Really, the only thing
00:05:55
that would be required to benefit from the podcast, I think would be the growth mindset.
00:05:59
And just a little bit, you know, talking about the reason behind that, we recognized after you
00:06:04
put together the Mac Power users discourse that there are a ton of people who listen to free agents
00:06:10
who aren't free agents. Yeah. Yeah. And who have no intention of being a free agent. They just like
00:06:16
the content. They understand the mindsets and the principles and they apply them to their own life,
00:06:20
which I think is awesome. But also, I think that there's a lot of people who don't even listen to
00:06:26
the show because of the name who could fall into that category and who could benefit from the
00:06:32
discussion. Sure. And so we want to make it more open, peel maybe to a broader audience, but really
00:06:39
not change the show all that much other than it's not going to be called free agents. And we're not
00:06:46
going to be talking about freelancing quite as much. We're going to be talking about a lot of the
00:06:49
same principles and ideas and systems and things like that. But it's going to be a little bit more
00:06:55
general. And also, it's going to open us up to have a few more interesting guests on there.
00:06:59
Like Chris Bailey is going to be on there actually in January, I believe.
00:07:03
Nice. So it should be fun. Yeah, it sounds very interesting. It seems definitely you and David.
00:07:08
Like, I feel like that'll be a really good fit. Definitely for sure. So I'm excited about this one.
00:07:14
I've known it's coming for a while. So I'm excited about it. Sweet. Yeah. And I also want to say,
00:07:21
because I know we were chatting before this and theirs, there's people out there who are a little
00:07:26
bit concerned maybe about the, how should I say this? You know, the one more thing in the productivity
00:07:33
space, I think that if you have an idea that is worth sharing, you don't need to worry about
00:07:40
whether somebody else is doing it already. And I just want to throw that out there because I know
00:07:44
that there are people myself, I've been there, you know, where it's like, I don't want to do
00:07:48
something that somebody else is already doing. And a lot of times you may be talking about the
00:07:54
exact same things even, but you've got a different perspective. You've got different dots that you're
00:07:58
connecting. And so just go make your thing. That's kind of what I'm learning is I'm going through
00:08:03
this faith based productivity thing is like, well, I'm super niche on some of this stuff. And it's
00:08:08
not going to appeal to a lot of different people. But for the people who does it, who it does appeal
00:08:12
to, like they're raving fans, they absolutely love this thing. There's always going to be an
00:08:17
audience. The internet is big enough for both of us or all of us, I should say.
00:08:22
Yeah, I know that there's a quite a few productivity-ish and related podcasts and things that are out
00:08:30
there. But, you know, there's a lot of those that I don't listen to because I don't really resonate
00:08:36
with the hosts that much. Whereas I know that I do resonate with you and David. So I'm one that
00:08:42
will listen to free agents and then focused. And then I'll skip on almost all the other shows.
00:08:49
Just because I have a relationship with you guys. And I feel like you guys have a lot of the same
00:08:54
views I do. And I resonate with you, whereas I don't with others. So I say that because I know
00:09:00
there's a lot of folks who have talked about or want to get into the space, it's like, go for it.
00:09:04
Because yes, there may be quite a few people out there. But there's always going to be, you know,
00:09:11
a group who don't really resonate with the people who are already there. And your voice
00:09:16
is likely the one that they will resonate with. So just go make your thing.
00:09:21
Just as to proof of that. In the productivity guild, there is a thread on goal planning for 2019.
00:09:29
And I was tagged in the discussion saying, "What do you do?" And before I could respond,
00:09:34
somebody else had posted in there, "I do a personal retreat." And here's a link to my PDF guide. And
00:09:40
my response when I saw that was, "That's awesome. Like, way to go with that. It's actually really
00:09:44
well put together. It's totally not the way I would do it. But that's fine. Whatever works
00:09:51
for you." And so I shared my stuff in there and my process. But it just shows the point that I
00:09:57
ended my comment with, "The world needs more personal retreats." It doesn't bother me that
00:10:03
you put together this thing and it's free. And I put together this course and I'm selling it.
00:10:07
Because you could have that response. It's like, "Oh, this is a competitor." We're not competitors.
00:10:11
We're buddies. And since I talked about it, I don't like to sell promotion, but I do want to
00:10:17
just throw this out there because I mentioned it a couple of times. The personal retreat course
00:10:20
is available. And I'm doing the same thing for listeners, a bookworm that I did for listeners
00:10:24
of free agents, which is a 50% discount until the beginning of the year. So it's only $47.
00:10:32
I think it's $23.50 then if you get the discount. And so that will, you just use the coupon code
00:10:37
bookworm when you check out. You can say 50% on that. And then I also mentioned the goal setting
00:10:42
workshop that I was doing. That's going to happen January 5th, which is a Saturday,
00:10:46
a 12 p.m. Central time. And really what inspired this was I've done a lot of these for Asian
00:10:53
efficiency in the past. So I was kind of in the back of my mind. I wanted to do one of these one
00:10:57
sometime. And then I read a statistic that 92% of New Year's resolutions next year are going to fail.
00:11:03
And I got more upset than I probably should have. My newsletter that went out today,
00:11:10
I mentioned like, I have to do something about this. Yes. So I'm hosting this goal setting workshop.
00:11:16
And I'm going to walk through actually a lot of the exercises that are in the courses and just
00:11:21
kind of help people connect to the why behind the goals that they want to set or the resolutions
00:11:25
if you wanted to frame it a different way. And help this be the year that you actually achieve
00:11:29
your goals. So the workshop is free. I think there is limited space, but I don't know what it is,
00:11:35
whatever the webinar software software is limited is. But there'll be a link to that in the show
00:11:39
notes if you want to want to reserve your spot. Nice. All right. Stop talking about my stuff.
00:11:44
Let's get into this book. All right. So takeaways here. Oh, I'm sorry. I got to do one more.
00:11:51
Because there's listener of the show, Michael Diamond, he's actually kind of like a mentor of mine.
00:11:58
He bought a bookworm t-shirt when we did the campaign a while back. He's got a website and
00:12:03
he's putting together this huge list of his favorite books. And this is somebody that I really
00:12:09
respect somebody who reads a lot. And he's actually been in the national news lately. He's a really
00:12:15
smart guy. And he's got a list of his favorite books. And I remember one of the comments that
00:12:19
people made was you got to quit talking about the productivity and self help stuff all the time.
00:12:23
And my response in the bookworm club was, well, that's what I like. But Michael Diamond has a list
00:12:29
which has all the great categories. So he's got history, he's got biographies, he's got a whole
00:12:36
bunch of things. He showed me basically the work in progress, the draft version of this.
00:12:41
And I asked him if I could share it with bookworm. And so I've got the link. We're going to put this
00:12:46
in the show notes. He's assured me that this is going to be live by the time the episode publishes.
00:12:51
But when he showed it to me, it was really close. And I think that for people who wish we would cover
00:12:56
a broader selection of books on bookworm, there's going to be some great resources on this list.
00:13:01
Got it. Because I was clicking the link from the show notes thinking this 404 is Mike. Like this
00:13:06
doesn't exist. Okay, that makes more sense. It was basically done. And then I told him, hey,
00:13:12
that looks great, except it would look even better if you had like pictures of the books and like
00:13:16
the actual physical books. You created more work for me. He's working on it.
00:13:21
Still seem an harder for him. Okay, good job. Yeah. All right, that said, we're going to step into
00:13:28
a book today that is not in the self help, you know, productivity space at all. Like this is
00:13:33
very, very different than what we normally do. Today's book is being mortal by a tool go on day
00:13:40
who we've done one of his previous books, the checklist manifesto, one of my favorites that
00:13:45
we've done so far. And this, I'll put it this way. Mike and I had our, we normally catch up a little
00:13:53
bit before or after the show. We definitely did it before the show this time because I think we were
00:13:58
both just a little nervous about hitting the record button today. Yeah. Because so the tagline
00:14:03
on this book is medicine and what matters in the end. This is about end of life care, aging and death.
00:14:13
Very different than what we normally cover, Mike. Yep. So I think this will be an interesting
00:14:18
conversation. I feel like this was a very eye opening book and has led to a lot of questions,
00:14:24
conversations and such. But this is one I'm glad to have read, but I will say I think this book
00:14:31
probably made me cry more than any book we've read by a long shot. So this is a tough one. Very
00:14:39
large number of tears shed over this one. Yeah, this was difficult to read for sure. And I want
00:14:45
to preface this at the beginning because I feel like on this topic, we are not qualified to really
00:14:54
talk about sure. The productivity stuff, the self help stuff. I mean, maybe I should feel the
00:15:01
same way about that stuff. But I've been in that world for long enough that I feel like,
00:15:06
I feel more confident saying and sharing my opinions about different ideas in that arena.
00:15:12
This one, I really, I really don't know what to do because I haven't had to go through
00:15:19
some of the stuff that they talk about in here. Both of my parents are still living and they're
00:15:24
both pretty healthy. I remember going through it with my grandparents, but I was in high school at
00:15:29
the time and didn't really get it. So it feels like it's been a long time since I've had to go
00:15:36
through that. And there's some really heavy stuff in here. There really are no right answers. I feel
00:15:42
like for any of these specific situations, there's so much nuance that goes along with everything
00:15:48
in here. And I just want to preface this by saying like, we're going to do our best to treat the
00:15:53
subject with care and with sensitivity. But if I say something stupid, please forgive me because
00:15:59
I don't have the perspective that Dr. Gawande has. Agreed. Yeah, for sure. Because I know that
00:16:05
like I run sound at church. And one of the things you don't think about when you say that is that
00:16:11
our church hosts quite a few weddings, but even more so, a lot of funerals. And with that,
00:16:19
somebody's got to run the sound system. So I find myself at the church, at a lot of funerals,
00:16:26
and sometimes it's babies. It's grandparents, great grandparents. It's young dads, young moms.
00:16:34
Like it's hard. Like those are hard conversations. And it's hard being there in the room at one of
00:16:43
these funerals, hearing the stories and understanding what exactly happened. These are people I don't
00:16:50
know most of the time. These are complete strangers. And yet, it's very emotional even to just be
00:16:58
there with them and try to serve them in some way. I would say that is very different than this,
00:17:05
you know, if this was my parents that we were talking about who developed a cancer of some kind
00:17:12
and we needed to make decisions about end of life care, that's very different than experiencing it
00:17:18
with strangers, of course. But at the same time, I think that a tool Goanda takes us through this
00:17:26
process in a very emotional and a very detailed way, tells a lot of stories that are very hard
00:17:34
to read sometimes. And I think when you come out of it, you have a sense of not necessarily
00:17:42
closure on what you should do when confronted with an end of life situation, but more along the lines
00:17:51
of how should you think about it? And how do you make decisions once you get to the point of realizing
00:17:57
that you are at an end of life stage? So I think there's a lot of hard questions to ask here.
00:18:03
And again, I think you're right, Mike, that this is going to be kind of tricky to work through.
00:18:08
So it's very possible we may misquote something or say something off base. So feel free to call
00:18:15
us out on it. But at the same time, you know, this is not a simple topic either.
00:18:20
No, I can basically guarantee I'm going to say something stupid.
00:18:23
Sure. I apologize in advance. And it kicks off in the introduction, even.
00:18:29
Yes. So the introduction introduces us to a character named Mr. Lazaroff.
00:18:36
And the reason that I put this one in here is that he shares a statement which,
00:18:41
as I read the rest of the book, I found myself coming back to this over and over again,
00:18:48
because it kind of challenges everything else that Dr. Gawande talks about. But he says,
00:18:54
don't you give up on me? You give me every chance I've got. So using that as a
00:19:00
to set the tone for this book, basically, this is an older guy who they're trying to decide,
00:19:08
do you want to go through this surgery or not? What's the best thing that could happen if you
00:19:11
go through it? What's going to happen if you don't go through it? Whatever. And he responds
00:19:14
by saying, basically, give me every chance that I've got. So they do the operation. It's technically
00:19:19
a success, but he ends up dying anyways. And the point that they make at the introduction
00:19:24
of this book is that before they did the operation, they avoided talking honestly about the choice
00:19:29
that was really before him. And you need to have those difficult conversations and you need to let
00:19:34
the patient understand what all of the possibilities are and then let them make their own decision.
00:19:39
It kind of challenges the traditional view of medicine, at least the way Dr. Gawande
00:19:46
proposed it in this book, which was basically just do everything you can to keep the patient alive.
00:19:54
Do no harm sort of a thing. And he's basically saying that maybe that's not the best thing
00:19:58
for the patient in a lot of cases. And again, like, I'm not qualified to say yes or no.
00:20:05
But as I'm thinking about Mr. Lazarov and somebody who, this seems like a fairly common
00:20:11
response to me. And I'm trying to put myself in these shoes. And if my dad is trying to decide
00:20:16
whether he wants to have the surgery or not, and he says to me, don't you give up on me,
00:20:21
you give me every chance that I've got. I mean, I'm going through with it,
00:20:24
regardless of the risks. But Dr. Gawande is saying, well, maybe you shouldn't, basically.
00:20:30
I feel like it's a classic, you know, quantity of life versus quality of life.
00:20:36
Yep.
00:20:36
And we have a tendency to say that quantity of life is always the trump card. If you can extend
00:20:46
my life by two days, it's worth it. But what if those two days are you spent in a hospital bed
00:20:55
and you sacrificed a week with grandkids to get those two days? Like that's, that's the question
00:21:01
he's asking. Yep.
00:21:03
And that if you look at it in a retrospect, yeah, sure, you could probably make that decision,
00:21:09
especially, you know, you and I can make that decision right now, because we're not in the,
00:21:13
we're not there. We're not in a hospital sitting in with three nurses and a doctor trying to make
00:21:18
that decision. We're not there. We can do that right now. That's easy. But put me in the hospital,
00:21:24
and if that's my wife on the, that's, you know, that we're having this conversation about,
00:21:29
it's going to be very hard for me to make that clean decision like that.
00:21:33
Yep. Yeah, exactly. And he shares a vision in this introduction, section two, which,
00:21:40
I mean, this is pretty heavy, but he said that he had this recurring nightmare where the corpses
00:21:45
of the people who had died showed up at his house, holy cow. But really, like the thing that got him
00:21:50
moving in this direction was this, this vision and then encountering these patients he talks about
00:21:55
on four, on page three and being forced to confront the realities of where they are. Like they're
00:22:00
in the middle of decline of mortality. And he said it didn't take long to realize how
00:22:05
unready I was to help them. It just, it's, it really is emotional. Again, I'm not, I know nothing
00:22:13
about this, this world, but he kind of frames it as like the system doesn't teach you what you
00:22:18
need to know to look somebody who's older and dying in the eyes and actually help them not just
00:22:25
prolong their life, but help them live their best life until the point where they die. And,
00:22:32
yeah, like I said, I feel completely unqualified to talk about this.
00:22:36
Sure. Yeah, because we are, you know, and I would almost venture to say there's very few people who
00:22:41
feel qualified to talk about it. Thankfully, Dr. Gawande is one of those. I feel that is very well
00:22:49
respected in the and has the ability to talk about this stuff. But I also know that when you
00:22:57
think about, because I'm reflecting on a number of the doctors that I worked with going through
00:23:04
all of my Lyme disease process, it was very much an informational. Like here's what we know,
00:23:11
but never was it asked, how are you feeling with all this? Like that's not, you know,
00:23:19
the emotional side doesn't seem to be at the forefront of a lot of doctors and nurses'
00:23:25
thoughts. Maybe I'm wrong on that. At least that's been my perception, but it doesn't seem to be
00:23:32
the norm at least. And I kind of wish it was, but I don't know what you do to get to that point.
00:23:38
Yeah. But that's what he's getting at here is you get to a point where you're talking with
00:23:43
somebody who has cancer and they're dealing with or coming to grips with the fact that
00:23:48
this is it. Like the chemo is not working. Now what? And being able to have those conversations
00:23:55
about the reality of the situation versus, well, here's the third type of chemo that you could try
00:24:02
and it does have like a 10% success. Well, that's just information sharing. Like that's not actually
00:24:09
working through what the patient wants in that case. Yeah. That's not a simple thing to approach.
00:24:15
And I understand it from the doctor's stance. Like, I wouldn't want to bring that up.
00:24:18
I wouldn't want to be the one that says, Hey, by the way, you're dying. Like, what? That's
00:24:24
insensitive. Like that's not not a thing I would want to bring up. But he's the one saying that,
00:24:31
you know, maybe we do need to bring it up. Yeah, I agreed. Also,
00:24:35
playing into this conversation to my perspective and my inner turmoil with this topic is my religious
00:24:44
belief system. Because I have seen people close to me who have been healed of cancer and the doctors
00:24:53
don't know how they were healed. And I believe that faith has a big part to do with that.
00:24:59
It really doesn't have any place in the discussion of this book, I feel. But if you have somebody who
00:25:08
has faith that they can and will be healed and like Mr. Lazar off, they say, don't you give up on me,
00:25:15
you give me every chance I've got to feel like there's not a whole lot you do do in that situation.
00:25:20
You pray and you believe God or whatever, you know, and that's that's the other side of this coin.
00:25:29
And I don't have a simple answer for that. I try to disconnect from that as I read through
00:25:35
the rest of this this book because he's approaching it from a medical perspective. And you look at
00:25:43
the facts and you make an informed decision. But that's also, like I said, based on my experience,
00:25:50
I've seen people close to me Rachel's mom was was healed of cancer. And so how do you weigh that
00:25:58
into this conversation? I don't know. Yeah, because he's he's definitely in the science
00:26:04
side of this. Yeah, you know, I feel like you and I could have a whole conversation about,
00:26:09
you know, how does how does God play into this? Into this conversation, but he's left completely
00:26:15
out of this book entirely, which is fine. Again, this is a medical doctor talking about this
00:26:20
from a medical perspective. And I know we get accused of bringing our faith into this podcast
00:26:25
too much. Whoops, literally, like Rachel's mom, we we had communion, we prayed for her and she
00:26:32
went into the doctor and the cancer was gone. Like you can't explain that. And I don't know what
00:26:39
doctor go on. They would say about something like that. But I've seen it happen myself. So like,
00:26:44
it's real. And you can define real based on your own experiences, your own belief systems,
00:26:49
however you want to. But that's what's going through my mind as I read this. I also think there
00:26:55
is very much a valid perspective to everything that he shares here. It really challenged me and
00:27:00
we're going to get into some of this stuff in a little bit, like the specifically the assisted
00:27:03
living and like the poor houses, that sort of thing. Like that's that's crazy. But I just I'm
00:27:09
having a really hard time. And this is a big reason why I was hesitant to record this one, like
00:27:14
reconciling all of this in my head and trying to speak to it in a way that is bringing information
00:27:24
and value to the person who's going to invest their time to listen to this and not just hearing me
00:27:29
from a religious perspective say, Oh, you got to believe God. Like, you got to have wisdom too.
00:27:34
And you got to listen to to wisdom and you got to look at the facts. But also like,
00:27:40
the facts can can tell part of the picture and you can believe that picture. And then
00:27:46
that picture may not be the true reality. Like there's there's so much nuance to this. It's so
00:27:52
difficult for me to talk about this. I feel a lot of weight and a lot of responsibility in trying
00:28:00
to articulate this the right way. I'm trying to be very careful with my words. And I feel even
00:28:05
then like I'm failing miserably. You get over it. We'll be all right. All right, let's do this.
00:28:11
Let's just jump in. So chapter one, the independent self. You got a couple points here,
00:28:16
one of which is activities of daily living. Where are you going with that?
00:28:20
Yeah, well, there were a couple lists in this section, which were interesting to me because I,
00:28:25
for the last several years, I've worked with a family business that creates software,
00:28:29
even before I was working with Asian efficiency, like I've been doing this out of college,
00:28:34
create software for special education. And there's a subset of people in special education with
00:28:39
moderate to severe disabilities, who the classification for the type of instruction that they need
00:28:46
would be something like independent living skills. And so when he's talking about these
00:28:51
activities of daily living, this is a lot of the stuff that our software is designed to help people
00:28:56
with moderate to severe special needs do. He's got the eight activities of daily living, which are
00:29:01
use the toilet, eat, dress, bathe, groom, get out of bed, get out of a chair and walk. And then
00:29:06
there's eight independent activities of daily living, which are shop for yourself, prepare your
00:29:10
own food, maintain your housekeeping, do your laundry, manage your medications, make phone calls,
00:29:14
travel on your own, handle your finances. So those are kind of all independent living skills.
00:29:19
And those are the things that we've worked with a lot of people over the years to get them to the
00:29:23
point where they can live as independently as possible. And when he's talking about in this
00:29:27
first chapter, the independent self, the way I read this is kind of like, if you have somebody
00:29:33
who is independent, and then at some point they become dependent, at what point are they,
00:29:40
at what point do they cross that line? Like how many of these things do they have to be able to
00:29:44
check the box in order to make their own decisions still sort of a thing? Because I've mentioned that
00:29:49
the nursing homes and the assisted living and stuff like that, that's one of the things that
00:29:53
really impacted me in this book. And we'll talk about that in a few chapters where it really comes
00:29:57
up again. But as someone with parents who are doing great, but my parents are both about 70 years
00:30:03
old. And so it's going to come to the point not too far in the future, where they're not going to be
00:30:09
able to live completely independently. And what happens at that point? Do we stick them in a nursing
00:30:15
home? And I should say like the nursing home may be the right answer for some people. But it shouldn't
00:30:21
be, I would argue the default answer, which is kind of what it's become. And he even talks about
00:30:26
later on, like this daughter who goes into a nursing home with her father to look at it,
00:30:30
the person who's there is selling it to the daughter. He's not even talking to her dad who's
00:30:35
going to be living there. And he's just kind of resigned to the fact that like my daughter doesn't
00:30:39
want to take care of me sort of a thing. Like he doesn't say that, but that's kind of the picture
00:30:42
that you get. Right. You know, and so I don't know, like again, there's no right answer to this, but
00:30:49
I like the the list here of the activities daily limit. It really got me thinking like,
00:30:54
okay, so these are the things that we kind of accept as like, this is what you need to be able
00:30:58
to do. But then maybe one of these things you can't do anymore. That's a warning sign. A couple of
00:31:05
them, you know, now you really got to start thinking about this. And it shouldn't just be,
00:31:08
okay, now I need to take care of my elderly parents. I've got all this stuff going on. I have to take
00:31:14
my kids all these different places. I have no idea where this came from. I never saw this coming.
00:31:18
Well, if you look at these lists, like you can basically see this coming. And then don't make a
00:31:23
decision, a reactionary decision based off of the needs of the of your current situation.
00:31:28
Because you can't, you can't figure out a way to do that. Like I feel like if you see it coming,
00:31:34
you can make modifications and you can take steps which are going to allow you to take care of
00:31:39
elderly parents and not just put them under somebody else's care. And that's really the second point
00:31:46
where he compares like aging in India versus aging in the US because they're two totally different
00:31:50
things. Yes. And that's, you know, this is a thing that really struck me. Because as I was reading this,
00:31:58
this first chapter, I finished the first chapter and thought, hmm, I feel like I would rather live
00:32:05
in India right now like that. That's my thought because he tells the story of his grandfather
00:32:10
who ran a farm in India. And then he was what late 80s and he had some health issues that struck
00:32:20
at that point. And instead of, you know, if you go back to this list of activities of daily living,
00:32:27
I think it was close to half of those he was incapable of doing.
00:32:30
After, I want to see it was like a stroke or something. I'm blanking on what it was, the health
00:32:36
issue was. But he was incapable of doing close to half of those activities. In the US, that would
00:32:43
immediately put him in a situation where they would, they would highly recommend a nursing home
00:32:50
and look at something along those lines. Whereas in India, it just meant that the sons and daughters
00:32:58
and grandkids got involved with helping grandpa with his day to day life, which kind of dumbfounded
00:33:06
me. It's like, well, yeah, I know of people who do that and take care of their parents and such, but
00:33:10
that's a lot of work, to be honest. And it kind of struck me on a little bit of a different chord
00:33:19
because, you know, in that realm, he ended up living to where he was in his over 100 years old.
00:33:27
So he lived for quite a while after that in that scenario, having never gone into formal, long-term
00:33:33
care of any kind. And it kind of struck me in a couple ways. One, we don't have that expectation
00:33:41
in the US at all. Well, I shouldn't say at all. The majority of people don't expect that. Nursing homes
00:33:48
are kind of the de facto answer there. And two, it was kind of sad to think about how, you know,
00:33:56
families are quite distributed across the US anymore. You know, even my immediate family were
00:34:01
spread out quite a bit. And I'm the one who is the furthest away. So, you know, I think about that,
00:34:08
and it's kind of concerning. But it's interesting how that has led us to a point where it's not really
00:34:16
an option to just move in with your kids when you hit that point. Like, say you're not able to do
00:34:22
half of these activities of daily living. It's not normal to move in with your kids long-term,
00:34:29
anyway. Like, sure, it happens as kind of a halfway point until you can find a nursing home.
00:34:34
But it doesn't seem to be the norm. But is that because families aren't as close as they used to
00:34:40
be? Are they not as reliant on each other as they used to be? You know, I feel like there's a lot of
00:34:45
potential reasons for that. But it was a little bit disheartening to think about that we just
00:34:51
don't help our own families out as much as what we used to. So, it was kind of sad to think that
00:34:56
through. Bottom line is we're all a bunch of selfish jerks. Well, there's that.
00:35:00
Seriously. I mean, he talks about some of the different contributing factors to the situation.
00:35:07
And I think that a couple of things are worth calling out here. Number one is that people are
00:35:14
living longer. And number two, that wisdom and status are no longer being attributed to the elderly.
00:35:22
So, in India, where wisdom and status are attributed to the elderly, the age of the live,
00:35:28
how they want supported by their family. Because that's what you do. Grandpas are in the right to
00:35:33
live how he wants. But in the US, we view it as having to take care of my elderly parents. It's
00:35:38
like a convenience. It's cramping my style. So, I got to figure out how to get my freedom back.
00:35:46
And it really is selfish if you think about it. The question that he poses here, based on those
00:35:53
lists of independent daily living, is if independence is what we live for, what happens when it can
00:36:00
no longer be attained. And I think the respect and the wisdom that you attribute to the elder
00:36:07
generation, that's definitely going to influence the decision that you make. But that's also
00:36:14
not what happens in the US for a lot of people. I mentioned the story about the lady bringing her
00:36:20
dad to look at the nursing home and the salesperson selling the nursing home to her. That just seems
00:36:26
so wrong to me. But I don't know. I mean, that's where we are. So, the big question then is,
00:36:34
where do we go from here? And it's going to be different for every situation. Like I said,
00:36:37
there's so much nuance associated with this. I really can't make a call and be like, this is
00:36:41
what should happen. But I will say that it challenged me. And by the end of this book,
00:36:47
I was like, there's no way my parents are going to a nursing home. I'm doing everything I can.
00:36:51
Yeah, I can't say I made it to that point, Mike, but I'm not far.
00:37:01
I feel like there's a lot here. And it's very, it's an empowering book, I think, in that way,
00:37:07
to your point. My parents are not going to a nursing home. But at the same time,
00:37:11
we are still in a point where we do like our freedom to a pretty large degree. So,
00:37:20
yes, I feel like it's not that simple. Right. It's definitely not that simple.
00:37:26
No, no, not at all. All right. Chapter two, things fall apart, Mike.
00:37:31
Yes, they do. And they fall apart quickly. We don't really need to spend a ton of time in here,
00:37:35
but there is a story about a lady Jean Gavrilles. I think is how you say that.
00:37:39
And she was living on her own and was doing fine. And then things fall apart, hence the chapter
00:37:50
title. So basically in this section, they talk about the three primary risk factors of falling,
00:37:57
because falling is a big thing that causes people to quickly go from being able to live
00:38:07
independently to not being able to live independently, and then very quickly coming to the end of their
00:38:12
life. They actually said that the greatest threat to elderly people was falling because 40% of people
00:38:18
who fall end up in a nursing home and 20% can never walk again. So from there, it's a quick downward
00:38:25
spiral. But the three primary factors, or risk factors for falling are poor balance, taking
00:38:31
more than four medications and muscle weakness. So when she goes in to the doctor because she's got
00:38:38
back pain and this thing with her lung, they get fixated on her on her lack of balance in the
00:38:46
five medications that she's on. And they're like, we really need to make sure that you do not fall,
00:38:53
because if you don't have any of those risk factors, then you have basically a 12% chance of falling.
00:39:00
But if you have all three of them, you're at virtually 100% and Jean had two of them.
00:39:05
So I thought this was an interesting perspective. Like you go in for one thing, and then the wisdom
00:39:11
of the doctor, they recognize that something else is wrong, and then they're able to identify.
00:39:14
This is the thing that we really need to be careful of. This is the thing that could
00:39:18
end your independence quickly. And so this is what we're going to do to fix this and the other
00:39:22
stuff that's minor. I think there's a lot there that you could unpack. I think it's...
00:39:29
I'm just going to say this. This is where my action item came from. I have one.
00:39:36
But this is where it started, I guess, because Jean's story here concerned me quite a bit.
00:39:45
Okay. Between my parents, my in-laws, probably more so my in-laws than my parents, as hard as
00:39:53
that is to say. If something happened and happened quickly, I feel like we would want to be very
00:40:02
involved. But at the same time, it means that we need to have some of these difficult conversations
00:40:09
now versus waiting. Because how many times in the book does he tell a story, and then they have
00:40:18
to ask some hard questions that no one wants to answer, but they should have really asked those
00:40:23
questions six years prior, or a decade prior, or longer. Like, I don't want to be in that position.
00:40:31
I don't want to be in a spot where I need to ask, you know, how do you want us to handle things if
00:40:38
you're incapable to make decisions for yourself? That's not a fun conversation.
00:40:43
Yeah. Don't walk up to your in-laws and say, "How do you want to die?"
00:40:47
Yeah. But at the same time, they may not be able to answer those questions, but it should at least
00:40:54
spark the thought process to work through that. And again, that's not a fun thing to bring up.
00:41:02
You have to be very delicate in how you even approach the topic, but it's still one that I feel
00:41:09
like needs brought up because things can happen quickly. That was my takeaway from this chapter.
00:41:16
I think we got to be delicate in how we approach this topic, and we're still going to lose a
00:41:19
bunch of listings. Well, in Teach Their Own. Yeah. Now, I agree. That action item could probably
00:41:28
come from a lot of these different chapters. That really is the only action item that you could
00:41:33
possibly have from this book. I didn't have an action item, by the way, because I'm not ready to
00:41:38
have those talks yet, but it does make me think about it. Like I mentioned, as I'm reading this
00:41:45
book, and especially in the next couple chapters where they talk about the nursing home,
00:41:48
I'm like, my parents are not going there. But I do recognize that at some point you are going to
00:41:52
have to have those difficult conversations, and you are going to have to figure out how to come
00:41:57
to an agreement with these things. And again, no easy answers to that. Should we talk about
00:42:02
nursing homes? I don't want to, but I feel like we should. All right. So chapter three is called
00:42:09
dependence. And the all my notes, basically, from this section have to do with the Irving
00:42:19
Goffman who compared prisons and nursing homes in his book Asylum. There were four characteristics.
00:42:26
All aspects of life are conducted in the same place and under the same central authority.
00:42:31
Number two, each phase of the member's daily activity is carried on in the immediate
00:42:35
immediate company of a large batch of others. Number three, all phases of the day's activities
00:42:40
are tightly scheduled. Number four, the various and forced activities are brought together into
00:42:44
a single plan, purportedly designed to fulfill the official aims of the institution. And as you
00:42:50
read those four things, I'm not sure what kind of reaction you had, but I'm like, that sounds miserable.
00:42:55
So, not a, not a painting nursing homes in a very positive light, but also in this chapter,
00:43:04
they talk about the history of them. Because in the early 1900s, the elderly that weren't wealthy or
00:43:12
had children to take care of them went to poorhouses, which were sad, disgusting places for elderly
00:43:19
poppers out of like immigrants, young drunks, and the mentally ill. And they typically spring up,
00:43:25
he mentions in the book, in countries that were transitioning from poverty to wealth,
00:43:29
because at that point, you are breaking up the extended families without producing enough
00:43:35
affluence to really take care of these people. So they're kind of falling through the cracks.
00:43:40
And on page 71, he says that nursing homes weren't created to help people facing dependency in old
00:43:47
age. They were created to clear out hospital beds. And when you think about it that way,
00:43:55
I don't know, it just left a very poor taste in my mouth. But I can think back to all the nursing
00:44:01
homes that I have been in. We even have a ministry at our church where once a month we go to the
00:44:07
nursing home that's down the street from our church. And it's got a reputation in town is not a very
00:44:12
nice one. And we just go visit with people who don't have anybody else who is going to come visit them.
00:44:18
And every time you step in there, it just, it doesn't feel great. It feels great talking to the
00:44:26
people and seeing the reactions that they have and how appreciative they are, but just walking into
00:44:30
the place, as he's describing this, I'm like, "Oh, yep, that's that place. We go there once a month."
00:44:36
Like he's hitting the nail on the head. And I know that they're not all that way. And in a couple
00:44:42
chapters, we'll talk about Bill Thomas, who had a different way of doing things. So there are
00:44:48
people who are challenging this, but understanding the history behind it, I don't know. It just helps
00:44:54
me see where we got where we are. And then also it just makes me feel real sad for the current
00:45:00
situation and challenges me like, "What can I do to help this?" Like I said, we've got to
00:45:06
ministry our church where we're going once a month. That's great. That's one small step in the right
00:45:10
direction. But there's a lot of hurting people there. And there's probably a lot more that I could do.
00:45:16
Yeah. I think we're generalizing when we say nursing homes, when we talk about the state of
00:45:22
nursing homes, as he does as well. And he acknowledges that in the book. He's like,
00:45:27
"This is not necessarily... It's not every nursing home because he knows of nursing homes
00:45:34
that do things absolutely right." And again, we'll talk about one of those here in a little bit.
00:45:39
But generally speaking, there are a lot of similarities between nursing homes and prisons,
00:45:47
to your point earlier. And this just struck me so hard. You think about what happens in prison
00:45:56
versus what happens in a nursing home. Well, it's all set schedule. Everyone gets up at the same time.
00:46:00
Meals happen at the same time. All of that happens. Everything's dictated.
00:46:06
You have no control over it. Everything is... When do you take your medications,
00:46:09
when are you going to take a bath? All of that. All has to happen on a schedule that's set by
00:46:15
someone other than yourself. Well, that's the same thing in a prison.
00:46:19
Okay. Exactly. So just taking a step back, you and I are creatures of habit. We do things based
00:46:29
on routines. We have our way of doing things. If someone told me that I now needed to get up at
00:46:37
six o'clock and I was going to have breakfast once, not twice, lunch is going to happen at 11.30.
00:46:45
You know, we'll have game time at 1 p.m. Like, if someone started dictating that to me all the time,
00:46:51
I am pretty sure I would revolt. Yeah, exactly. Which makes it easy to see then why there are so
00:46:58
many people there that are bitter. One of my gap books, I forget which episode it was for,
00:47:03
was 30 Lessons for Living. And it was written by a guy who went to all of these different
00:47:10
nursing homes and he found the bright spots. The people who have the great personality,
00:47:15
they're always smiling, they've got joy, which is not normal for that situation because a lot of
00:47:21
those people are there. It is a prison to them. They're there against their will. They don't want
00:47:25
to be there, but they're not independent enough to do anything about it. You know, the kids stuck
00:47:29
them there and they never come to visit. That sounds very general and negative, but that's the story
00:47:33
of a lot of the people, the one that we go visit. It's really, really sad. So, the 30 Lessons for
00:47:40
Living though, he goes and he interviews thousands of these people who have a different perspective
00:47:44
about what are the things that allowed you to live a good life? Why do you have the attitude that
00:47:52
that you have? And so, there is obviously things that you can do to overcome your circumstances.
00:47:58
It's not just a situation that you happen to be in, but it's easy to see how you can default to
00:48:05
that and you really can't blame anybody who's stuck in that nursing home because their kids don't
00:48:09
want to take care of them. That's convicting to me. I don't want that to happen.
00:48:13
Yeah, and I suppose we need to be careful there too because their kids don't want to take care
00:48:17
of them. That may not necessarily be the case. True. Yeah, again, we're generalizing. I'm going
00:48:21
to say stupid stuff. I apologize. I just caught that one. That's all because I know of,
00:48:28
even personally, I know of situations where it's not a matter of whether or not
00:48:33
son or daughter wants to put mom or dad in a nursing home. It's simply not an option.
00:48:41
Correct, but there are people that we go visit. I'm like, "Hey, how are you doing?"
00:48:47
Okay, and we get to talking to them and like, "Do you have any family?" "Yeah,
00:48:51
do they live nearby?" "Yeah, they live in town." "Oh, did you get to see them?" "No,
00:48:55
they haven't been here in years." "That shouldn't be." Yeah, yeah. It's way too common for the people
00:49:02
that we minister to anyway. Yeah, no, I totally agree with you. I mean, it's overcome, but
00:49:11
just wanted to say it's not necessarily everybody, for sure. Okay. Thank you for clarifying.
00:49:17
So many disclaimers this time around. Yeah, it's sensitive topics. So many. Got a lot of it.
00:49:23
Chapter four, "Assistance." I feel like you have a lot to say on this one, but a lot of it has to do
00:49:28
with kind of a new way that came out after nursing homes because nursing homes and poor houses got
00:49:35
quite a bit of press. I forget the timeframe, the 40s, 20s. I've drawn a blank member to tell you
00:49:43
that she's... We read this book a while ago. It's been a while since we have tried to record it.
00:49:47
Yeah, we had our time getting recording done on this one, but there was kind of this next level
00:49:53
of assisted living as opposed to a nursing home. And with that, I feel like there's a chance for
00:50:03
assisted living could be a good step forward, at least by its original design, but I think it's
00:50:09
become more than that, more than they intended it to be. Maybe not more, less than the intended to
00:50:15
be. I don't know. One of those two. Right. So the thing that I wrote down here, I've got a couple
00:50:20
personal stories to talk about here. One story that stood out to me was "Loo and Ruth," which is an
00:50:29
older couple. And if I remember the story right, Ruth passes away. And typically, at that point,
00:50:35
when you're significant, other passes away and you're elderly, one of two things happens either.
00:50:41
You're so heartbroken that you follow not long after. Or if you've been the one that's taking care
00:50:47
of them, you now find some independence and you find another reason for living. My grandma was
00:50:52
kind of that way. She's taken care of my grandpa. And then when he passed away, it wasn't like she
00:50:57
was biting time until he passed away. She definitely loved him, but she found another purpose.
00:51:02
And she was really involved with her church and did a bunch of stuff. And it was cool to see how
00:51:09
she connected to something else when she needed to. And that's kind of what Lou did. I mentioned
00:51:14
in here that Lou made friends easily. He didn't mind being alone. He played cribbage with friends.
00:51:18
He went to the library, etc. And that totally reminded me of my great grandma Clara, who lived
00:51:23
to be, I believe, 98. And she lived in a town in Minnesota that my mom is from, called Welch.
00:51:30
She's only 60 people, but if you ski, you're probably familiar with Welch Village, which is
00:51:33
like a big ski hill. It's like the only thing in the town. And I remember going to visit my grandma,
00:51:39
who took care of my great grandma, and they retrofitted her house so that she could use the
00:51:44
bathroom and take a shower and all that stuff. My grandma took care of her. And every day,
00:51:51
she would go down to down the hill. In this town, there was like two stores, and one of them was a
00:51:59
tavern. And she would go to the tavern at like 1130 every day, and she would play Uker with a
00:52:04
bunch of other old people. And so as I'm reading this story about Lou, I'm like, that is so my grandma
00:52:10
Clara, because I never met my great grandpa. He passed away long before I was born. But that
00:52:16
was like she had so much fun doing that. And I thought that was kind of cool. But then also
00:52:22
later in this story, as he evolves it, and he talks about the assisted living part. He talks
00:52:27
about Shelley, who was Lou's daughter, I believe. And they're looking at assisted living,
00:52:33
lose in assisted living, because he loses some of his independence. And she goes to visit him
00:52:39
and the assisted living at page 104. It says what bothered Shelley most was a little curiosity
00:52:44
the staff members seem to have about what Lou cared about in his life, and what he had been forced to
00:52:48
forfeit. So basically, they didn't even care that he really got a lot of life out of playing
00:52:53
crib vision going to the library. And they didn't try to replace those things. You know, just you're
00:52:58
here, you're on our terms. They didn't recognize their ignorance in this regard. They might have
00:53:03
called the service they provided assisted living, but no one seemed to think it was their job to
00:53:06
actually assist him with living to figure out how to sustain the connections and the joys that most
00:53:12
mattered to him. Their attitude seemed to result from incomprehension rather than cruelty. But as
00:53:18
Tolstoy would have said, what's the difference in the end? Like, that's a really convicting
00:53:22
paragraph. And I think that accurately describes a lot of assisted living situations again, not all.
00:53:29
Yes. Okay. But I don't know, just one of these instances is enough for me to say like, that's wrong.
00:53:37
And then we need to fix it. And it reminds me also of a story with Rachel's mom,
00:53:43
because really, what is the point of assisted living? Is it health and safety? Or is it like he
00:53:49
talks about in page 104? Is it to assist in actual living? Rachel's mom was working, she was doing
00:53:56
childcare, I think at a church, and she heard her back on the job. They were being kind of dumb
00:54:01
about the workman's comp stuff. She needed to have back surgery, and she was living in a
00:54:06
downstairs apartment at the time. So we were like, this isn't going to work. You just come stay with
00:54:12
us and stay as long as you need. So she had the surgery, we have a ranch house. So she moved into
00:54:18
one of the bedrooms on the main floor. And she not only healed up, but she went back to school,
00:54:24
you know, once the workman's comp stuff got figured out. And she's actually graduating this
00:54:28
Saturday with a communications degree. She's got a job all lined up. Yeah, the Boys and Girls Brigade,
00:54:34
like it's awesome. She kind of reinvented herself. But it's encouraging to me to see that because
00:54:41
not to pat ourselves on the back, but I feel like that's the goal with assisted living. And
00:54:49
depending on how old you are, maybe the end goal is a little bit different. But to help people get
00:54:54
back on their feet, or to help people maintain the connections that are going to produce the
00:54:59
quality of life that they want to have, it's not just to keep them safe.
00:55:03
So he gives the history of assisted living here too. Like where that concept comes from. And
00:55:09
again, I'm going to blank on names here, but the gal who basically dreamed this up,
00:55:17
were started to build it, to build it out had a lot to do with her mom. And her mom going into a
00:55:25
nursing home and deciding, no, we're not going to do this. We're going to do something different.
00:55:31
We're going to find a different way to help people in the end of life stages. And it was designed
00:55:38
to help people maintain their own schedule, set their own, you know, if they want to skip their
00:55:45
meds, that's their call. Yeah, that's, you know, that's the thing. Like, as much as we like to say,
00:55:50
well, that's not that's being unwise, that's not being safe. Like you need to help them make sure they,
00:55:55
well, what if they cause side effects that they don't like? And by taking their ability to make
00:56:04
those decisions away from them, you're taking away their will to live at the same time. Yes.
00:56:09
So there's something to be said for allowing people the like, and I'm saying people there just to
00:56:17
kind of separate myself from it to some degree, but allowing people to make their own decisions
00:56:23
and make the calls in their own day to day life, because that gives them the dignity of having
00:56:28
control over themselves and not having it dictated to them like it would in prison.
00:56:34
Yep. So anyway, yeah. So page 89 to speak to the situation you're just discussing, he says,
00:56:42
home is the one place where your own priorities hold way at home. You decide how you spend your
00:56:47
time, how you share your space, how you manage your possessions away from home. You don't. And so
00:56:51
Wilson, I think was the lady's name, she talks to her mom, but well, what does your ideal place
00:56:56
look like? And actually wrote down the list that's small with a little kitchen in the bathroom.
00:57:00
It's going to have her favorite things in it. There's going to be people to help her with things
00:57:04
that she can't do without assistance, but she'd have control. She could adjust the heat, she could
00:57:07
lock the door, et cetera. Like you were saying, if she doesn't want to take her medication, she doesn't
00:57:11
have to. No one would make her get up, turn off her favorite soaps or ruin her clothes. She'd have
00:57:15
privacy when she wanted. She'd be a person living in an apartment rather than a patient in a bed.
00:57:20
So the history of this is that in 1983, Wilson and her husband created this thing called
00:57:24
Part Place, which was assisted living. And over the years, Dr. G
00:57:43
explains the reason that it got this way is because the focus was no longer on
00:57:50
helping Wilson's mother achieve the quality of life that she wanted, but it was focusing on
00:57:54
that health and safety because it's hard to measure Wilson's vision for assisted living.
00:57:58
It's a lot easier to measure health and safety. So that's where the regulations are, and that's
00:58:03
what gets measured. And the thing that I wrote down in response to that was a quote that he has.
00:58:09
He says, "We want autonomy for ourselves and safety for those we love." And I think that applies to
00:58:14
the middle-aged son or daughter who is looking at nursing homes for their parents. And I put as a
00:58:20
comment, "Don't fall into this trap." So like you said, assisted living, it's not all bad. It
00:58:26
actually started out really good. It was a response to something that they saw in nursing homes that
00:58:30
they wanted to fix. But over the years, because health and safety is the thing that is easy to
00:58:35
measure, it's kind of evolved to that point, generally speaking.
00:58:39
I want to talk about Bill Thomas. Can we talk about Bill Thomas?
00:58:42
Yeah. Chapter 5, Bill Thomas, he's an interesting guy. Let me tell you, this was the bright spot in
00:58:48
the entire book for me. I read this whole story twice. Yeah. Because it made me want to throw a party.
00:58:56
So chapter 5 is actually called a better life. And Bill Thomas was actually, he describes,
00:59:03
a doctor, wanted to describe them in the book as more farmer than doctor. He was a homesteader who
00:59:09
started working at a nursing home because of the regular day hours. And while he was there,
00:59:14
he recognized that this isn't a great place. And so he wanted to inject life into the nursing home.
00:59:20
And the director at the time told him, "You're confusing care and treatment," which
00:59:25
maybe we want to unpack that, maybe we don't. I don't know. But anyways, Bill Thomas believed,
00:59:31
yeah. Bill Thomas believed that a good life was one of maximum independence. And so he sought to
00:59:37
fix what he considered the three plagues of nursing homes, boredom, loneliness, and helplessness.
00:59:44
And in this story, they talk about a couple specific things that he did. He proposed right
00:59:51
away two dogs, four cats, and a hundred birds. And he had trouble selling it initially, but once
00:59:58
they got them, they found that the drug costs for the people who were living there fell 38%, and
01:00:03
the death rate fell 15%. And so this brings up this whole idea of individualism versus loyalty to a
01:00:10
cause bigger than yourself because a lot of these people, the highlight of their day was taking care
01:00:14
of their bird or taking the dog for a walk or whatever, like even just something simple, like
01:00:19
caring for an animal, that was enough to infuse purpose behind their existence in that place,
01:00:25
which when you think about it, if it's really that simple, like, what a crime to let people
01:00:32
stay in that place. And that's, again, there's so much nuance to all these different situations.
01:00:37
Everybody's going to be a little bit different, but reading this story, it kind of makes you think,
01:00:41
like, yeah, there is a way out. There are things that you can do.
01:00:44
I just love this story. Like, let's bring animals into a nursing home, and let's bring in a whole
01:00:56
bunch and let them take care of the birds. That just, it just made me smile and made me happy.
01:01:03
And I was kind of dumbfounded by the number of, like, he shared, Bill Thomas shared quite a few
01:01:09
of the results that they had with that. Even so much as there were people who they had never heard
01:01:16
speak before start to ask questions about whether or not they can walk the dogs, or, you know,
01:01:23
and that sort of thing starts to come out. Like, okay, well, there's more of this that's mental
01:01:29
than what we think. It's in our brains more than it is in the physical, in our biology, if you will.
01:01:37
I was thrilled to see this, and it kind of helped me realize that, you know, because I thought about
01:01:45
a number of the elderly folks that I have close relationships with, all of them have animals,
01:01:52
and some degree. It's like, huh, kind of interesting. I don't know if that's related at all, but
01:01:58
it was at least a point that was kind of interesting to me. But I like Bill Thomas. I think he has a
01:02:04
great idea with how to improve the situation. I would be curious to see how it's still going
01:02:10
today after a long-term process. But I've not done my research there. Call me a failure.
01:02:17
That's okay. No. I think really the big takeaway from here, because you spend so, so much up until
01:02:25
this point, talking about the negative atmosphere of these places, it's just injecting some positivity
01:02:30
and some life into them and making you think that it's not as hopeless as maybe it appears up until
01:02:35
this point. So chapter six, it's time to let go, Mike. This is a tough one. Can we skip this one?
01:02:43
Well, I'd like to. Okay. Let's not. Chapter six, just real briefly, there is something that I
01:02:51
want to call it for me. I actually have a ton of notes on this chapter because maybe I'm just
01:02:57
a naive millennial, but I had no idea what hospice really was. I just knew it was something
01:03:03
that when people said it, you kind of, everybody else got real quiet. Like, it was almost like a
01:03:09
bad word. So this is the first time I really understood it. He explained it here. Hospice,
01:03:16
he said, is only available for patients with a life expectancy that's less than six months,
01:03:20
and the goal of hospice is to help people with fatal illnesses have the fullest lives possible
01:03:25
right now. That seems like a really noble goal to me. And I understand why people don't want to talk
01:03:35
about it because it's almost like we're giving up at this point. And actually later on in this
01:03:41
chapter, he talks about a concurrent care program where policyholders with life expectancy of less
01:03:47
than a year were allowed to get hospice, but also still get the treatment. So when they did that,
01:03:54
hospice use jumped from 26% to 70%, but they found that those people visited the emergency room
01:04:00
half as often. And the use of hospitals and ICUs overall drop by more than two thirds.
01:04:05
And overall costs drop by 25%. That's the not attractive part of this chapter that he talks a
01:04:10
lot about is like a lot of the spending that comes with health care, like 25% of Medicare
01:04:17
spending, he said, is on the 5% of patients who are in their final year of their life.
01:04:21
So the point he's making without really making it is maybe we shouldn't spend so much money on
01:04:28
these people who are at the end, which isn't a fun conversation to have. But also the question
01:04:36
in the back of my mind. And again, not trying to make this a religious discussion. But the big
01:04:41
question here and the reason why a lot of people don't want to talk about hospice is like, why are
01:04:45
we so afraid of death? This is a natural transition. Everybody is going to go through this. And maybe
01:04:52
if we could, especially if we have something like a concurrent care program, maybe we can,
01:04:57
we can take advantage of this and we can work our way out of this, just the fact that we have
01:05:01
this support system, that means that we end up living a lot longer than we would have otherwise.
01:05:06
Another point he makes here is that doctors typically overestimate how long people live.
01:05:13
Out of 50 patients, they said 63% were overestimated, only 17% were underestimated. But the ones that
01:05:20
were overestimated, their average estimate was 530% too high. So I don't know, there's just so
01:05:27
much information and so much facts here that say like the best thing to do here is to provide
01:05:33
the hospice care to have your best life now. But also don't say we're pulling the plug and
01:05:40
continue to offer the care. Like going back to Mr. Lazarov at the beginning, you give me every
01:05:45
chance that I've got. Reading this chapter really struck me that you shouldn't have to,
01:05:52
by saying yes to hospice care, that shouldn't be the concession that we're not going to give
01:05:57
you every chance that you've got. Well, I work on church staff. Well, I'm on my way out of working
01:06:04
on church staff. So that's one of the side effects of me joining our company. But part of those
01:06:11
conversations on our weekly staff meetings have been, there's a time when we pray for
01:06:16
our church body and those who have requested prayer. So we have a whole prayer request process that
01:06:22
that they go through, which can sound kind of cold, but it's really quite endearing and it's
01:06:29
been a big part of our church. So it's common for the church staff to be talking about folks who
01:06:37
just learned the head cancer or they fell and now they're under hospice care or you know,
01:06:44
this person had to move into a nursing home. But I feel like whenever the term hospice is thrown
01:06:52
out, at least my experience firsthand with it is that we're not necessarily afraid to talk about it
01:06:59
as much as we are realizing that that means we need to go see them or go help in some way.
01:07:07
So it hasn't necessarily been a kind of a scary thing. It's more of a call to action of sorts,
01:07:14
which is probably the way it should be. But so I can't say that I can't say that I share that
01:07:22
reaction, Mike, where you hear the term hospice and you're a little bit afraid of it or don't
01:07:26
want to talk about it. I can't say that we'd operate that way. It might just maybe that's just
01:07:31
subcultures of areas and such regional thing. I don't know, but at least that's been my reaction
01:07:38
to it. Yeah, and that's that's completely fair. That probably is the right reaction. And really,
01:07:42
it's the result of normalization of the conversation. Like I said, my grandparents passed away when I
01:07:49
was quite a bit younger. And so I remember hearing the word thrown around, but also I remember
01:07:54
more seeing the reaction on my mom and dad's faces and my aunt and uncle's faces whenever it was,
01:08:01
you know, it's just like something you didn't want to talk about. And so again, I'm probably a naive
01:08:07
millennial when it comes to this stuff. But like when he explained it in this book, it was kind of
01:08:11
like, well, yeah, this is the right approach. This concurrent care program where it's not just
01:08:16
where you have to make the decision between hospice or having the surgery, giving you the person
01:08:22
every chance that they've got be willing to do both. And it sounds on the surface like doing
01:08:29
both. Maybe that's more expensive. But although the research shows that it's actually quite a
01:08:32
bit less expensive from if that really is the concern. And again, like that's making it
01:08:37
cold and based on a money decision instead of a person decision. But right, that's how insurance
01:08:43
companies probably would look at the situation. Again, I'm not qualified to speak to this, but
01:08:47
that's just the reaction that I had. The other thing here is the breakpoint discussions.
01:08:52
So this comes from a story about Susan Block and her dad. And her dad needed to have surgery.
01:09:01
Basically, there was surgery and there was some complications with his spine, I think.
01:09:06
And she had to make a decision about whether to send him back in for surgery. And they had had
01:09:10
this breakpoint discussion, they call it, to sort out when to stop fighting for time and when to
01:09:15
start fighting for something else. That's how Dr. Gawande describes it before they went in for
01:09:20
the surgery. And her dad said, "If I'm able to watch football and eat chocolate ice cream,
01:09:24
keep me alive." Which I love, by the way. I love that that was so clear cut to him.
01:09:30
Yeah. And it sounds maybe too simple or maybe it sounds, I don't know, like,
01:09:36
that's not real. But the story goes that complications in the surgery, Dr. comes out,
01:09:43
she's got to decide, she's got three minutes to decide about going back in for surgery on his spine.
01:09:48
And because they had that conversation, she's able to ask the doctor if it's successful,
01:09:52
"Is he going to be able to watch football and eat chocolate ice cream?" And so, yep, easy
01:09:56
decision. They go back in, they do the surgery, and he ends up living another 10 years and he
01:10:00
writes two more books. So not only was he able to watch football and eat chocolate ice cream,
01:10:05
he was able to write and do basically what he had been doing, what his life was all about,
01:10:10
up until that point. Which is awesome. But just taking the time to think that through,
01:10:15
I think that's a really powerful point. Yes. And at the same time, that particular
01:10:20
conversation is one that Dr. Gawande brings up with his dad. Because it's about this point in the
01:10:30
book where he starts to talk about his own personal experience with his father. And his father's decline
01:10:37
because of some health issues as well. So he posed that question to his dad and he's like,
01:10:45
"Well, that wouldn't be enough for me. Ice cream and football, I have no interest in football.
01:10:50
It's not a thing I'm going to do." But at least sparked the conversation that they needed to have,
01:10:56
which is exactly what the next chapter is about my hard conversations.
01:10:59
True. So there's a couple things from this chapter, but really I want to spend a big part
01:11:07
of this chapter talking about patch atoms. So there's three different types of relationships
01:11:15
between doctor and patient that he talks about in this section. There's paternalistic where the
01:11:20
doctors are the medical authorities aiming to ensure patients receive what they consider best.
01:11:25
The doctor makes all the critical choices. Take the red pill. Then there's informative,
01:11:30
which is the opposite. Doctors share the facts and figures the rest is up to you. So the doctor
01:11:34
is the technical expert, the patient's the consumer. And this is the more common way he says,
01:11:38
"Here's what the red pill does. Here's what the blue pill does. You decide." But he argues that
01:11:42
the ideal one is called interpretive. It's in between where the doctor helps the patient determine
01:11:46
what they want. And only when the doctor knows these answers can they say whether you should have
01:11:50
the red bill or blue pill. It's kind of a shared decision-making process. And as he was going through
01:11:57
this, I texted you because I was thinking about the movie patch atoms, which I hadn't watched in
01:12:05
a really long time. But I remembered the doctor at the beginning of that movie when he checks himself
01:12:11
into the medical or the mental hospital. And he's talking to
01:12:20
him and the doctor's not even listening. He's totally the paternalistic guy. He's like,
01:12:24
"I'm the one who can make the decisions about whether you're cured and you can live independently
01:12:30
or not." And I went back and watched the movie. I asked you if you would do it too, and maybe we
01:12:37
could share some insights from this because I was pretty amazed after I watched it how much of an
01:12:44
emotional impact that movie had on me after reading this book. And again, this is totally Hollywood,
01:12:51
so I'm sure that you could nitpick a bunch of stuff in here. But there's some really profound
01:12:58
things I think that happened here. When he's checking himself into the psych ward and he's
01:13:02
talking, he's narrating through all of the things that are going through in his head,
01:13:07
that felt a lot to me like the description of what people go through before they enter a nursing home.
01:13:14
And then even once he gets in there, they say, "Wake up as at 7am," and they lock the door behind
01:13:18
him. The doctor doesn't listen. He doesn't really care about the patients. It attaches an image
01:13:27
to it. And again, it's Hollywood. It's a movie, but you see it in a way, I don't know. I saw it
01:13:34
different when I read this, after I read this book, it hit me in a more profound way. And obviously,
01:13:40
the character in that movie, Patch Adams, he's able to just walk out of there and completely
01:13:43
change his life because he gets this revelation that I really want to help people. In fact,
01:13:47
he tells the doctor at one point, "I want to help people." He's like, "That's what I do." He's like,
01:13:50
"Yeah, but you suck at them. You don't even look at people when they're talking to you."
01:13:53
So I don't know. What was your response? When you went back and watched the movie?
01:14:01
Well, I didn't get a chance to actually watch it, but it's only been, I think, two years ago,
01:14:06
since I watched it most recently. So I went and watched a bunch of the trailers and stuff just
01:14:12
to refresh my memory on it because I remember watching it and seeing that as something that
01:14:23
I wished happened more. Now, granted, so it's a Robin Williams movie.
01:14:27
Which, that alone, by the way, knowing what we know now about him committing suicide, like,
01:14:32
"Wow, you go through that movie and you see him going, his character is portraying this internal
01:14:39
struggle later on in the movie. He's contemplating suicide." And you're like, "Wow."
01:14:43
Yep. I had no idea when I watched it the first time.
01:14:47
Yeah. It's bone-chilling when you start thinking through all the nuances that come with it. So,
01:14:57
yeah, it's a fascinating movie. I think if you were to read being mortal and then turn around
01:15:04
and watch it in the way that you just did, Mike, I could definitely see how that could really
01:15:10
almost mess with your head. It does. What? Like, this is, yes, that's exactly what I could
01:15:16
definitely see those reactions. Totally personifies what Dr. Gawande is talking about. In fact,
01:15:22
we just got them talking about the three different types of relationship between doctor and patient.
01:15:26
And the dean, when he first gets into medical school, Robin Williams' character,
01:15:32
he says, "First, do no harm." And that made me ask the question after reading this book, like,
01:15:37
"What is harm?" Yeah. Keeping them alive even though they're miserable, is that harm? Or is it not
01:15:44
doing everything that you can to extend the life of the patient? There's so many questions that
01:15:48
he's struggling with that I did not even realize in the nuance of how that movie was filmed.
01:15:54
He says, "In that same speech, the dean, he says, "We're going to train the humanity out of you."
01:16:00
And I was like, "Wow." Like, Dr. Gawande was just talking about this, how we don't address these
01:16:05
things in the medical system, and we need to change this. And I'm like, "Here's this guy in this
01:16:09
movie who's totally living up to the stereotype that Dr. Gawande just painted in this picture."
01:16:14
Yeah, perfectly too. Like, that's to a T. That is the type of doctor you do not want. But,
01:16:20
you know, that's the way the movie goes. But that's also the exact relationship that Dr. Gawande is
01:16:26
almost warning against. And how, I mean, go back to one of the questions I asked at the very beginning,
01:16:32
is taking a week of treatments to prolong your life by two days better than just taking the
01:16:37
week that you had to spend it with grandkids. You know, that's, is it doing harm to do the treatment
01:16:45
to extend your life by those two days? In that particular case, I would say yes. Right now,
01:16:52
not being in the situation and having zero emotional ties to it right now. Like, that's,
01:16:56
that's the decision I feel like I should make. But trying to think that through from a doctor,
01:17:04
from a training aspect, like when doctors are in school, like, how do you teach that? Like,
01:17:11
that's, that's not simple. I don't think like, you're basically teaching people to be subjective.
01:17:17
Yep. Which brings all kinds of potential messiness with it and how our insurance
01:17:23
company is supposed to deal with that. Exactly. And then when something goes wrong,
01:17:27
whose fault is it? Right. If it's subjective and you did something,
01:17:32
I can totally see how that can haunt you. I can totally see how Dr. Gawande deals with that
01:17:37
nightmare that he described at the beginning of where the corpses of the people who died showed
01:17:41
up at his house. And I remember, when I watched the movie, there's a point in there. So spoiler alert
01:17:46
right now, if you've not watched Patch Adams and you don't want to know how this ends,
01:17:49
turn off the podcast right now. Because there is a point in there where Patch Adams convinces
01:17:55
everybody that is around him that the thing to do is to increase the quality of the patient's life.
01:18:00
So they kind of go and they start their own clinic. It's not really a clinic, but it's just a place
01:18:04
where they can go show care to people who, who need something. Maybe they need a band aid or they
01:18:10
need a, you know, this brain and ankle or whatever. They're not professing to be like a medical
01:18:15
alternative, but they're for all of the people who aren't getting the, the human element of the
01:18:21
care that they want when they go to the hospital. Okay, so there's this guy Larry who walks in and
01:18:26
he makes a call later and he says he needs some help. Okay, so Patch Adams, his character,
01:18:32
falls in love with his other medical student, Corinne, she gets the call and she goes to Larry's
01:18:38
house. Larry ends up, they don't show anything. So it's not brutal or anything, but he ends up
01:18:43
killing her and himself. And Patch Adams that rocks him and he's, he's, he basically walks away from
01:18:50
medical school. He's about to graduate. He's just like, everything I know is wrong. And he's talking
01:18:54
to Truman, who's another medical student. He's like, you can't just walk away from this place.
01:18:58
You're the one who did this. You know, Corinne's death doesn't change anything. Like we still need
01:19:02
to help these people and Patch the struggle when she dies. He's like, I taught her the medicine that
01:19:07
killed her. Oh, the ouch. Twist the knife a little deeper. You know, like I can see where as a,
01:19:14
especially as a doctor, like Dr. Goan day, you're gonna constantly be going back to the lives of the
01:19:19
patients that you have, that you have delivered care to and saying like, have I done everything?
01:19:24
Have I done the right thing? Especially if you don't have any formal training in geriatric care
01:19:29
or whatever the case may be. Geriatric care is one small subset of this, but it's also a point
01:19:34
that stood out to me. He said that they really don't teach this. And this is where the need is.
01:19:39
This is where we're completely unqualified as doctor, Dr. Goanda's words to minister to these
01:19:46
people and to care for their real needs. It's so powerful. Now the movie isn't all negative.
01:19:52
And Zana positive. The dean tries to keep him from getting his medical license. He ends up getting
01:19:59
it. And he delivers this really passionate speech at the end in front of the medical board.
01:20:04
And he says a couple things, which really I thought encapsulated the whole idea behind this book is
01:20:09
that a doctor's mission should be not just to prevent death, but also to improve the quality
01:20:13
of life. If you treat the disease, you win or you lose. If you treat the person, you win every time.
01:20:18
And I thought that was a really powerful idea. I may feel like that encompasses a lot of this book.
01:20:23
Yes. Single handedly. Yep. Exactly. I could not believe after I watched it, how many parallels
01:20:30
I found. Because I did go back and I watched the whole thing. And I was trying to take notes as
01:20:36
I was going through. But a lot of times I just got myself, found myself just sucked into the
01:20:40
emotion of the movie in a way that I never had been before. So I don't know if this is an
01:20:45
interesting topic to you. I definitely recommend that movie, especially after listening to this
01:20:48
podcast. Yeah. Yeah. Give it a new light for sure. Yeah. One more chapter. Okay. You ready?
01:20:58
Courage. I have to admit that whenever I saw the title for this, the only thing that came into my
01:21:04
mind was Phil Schiller on the stage at Apple when they pulled the headphone jack out of the iPhone.
01:21:13
Oh my gosh. I didn't even think about that. I'm glad I did. That was the first thing I came
01:21:17
to mind. I didn't. Wow. I'm sorry. There you go. Easter egg of the day. I'm not sure I can even
01:21:21
talk about this now. Yes. Two kinds of courage. I'll cue you up. How about that?
01:21:29
So the two different kinds of courage that are required in aging and sickness that he outlines
01:21:34
in this chapter are the courage to confront the reality of mortality and the courage to act on
01:21:39
the truth that we find. And I think that's a great way to articulate this. He defines courage as
01:21:45
strength in the face of knowledge of what is to be feared or hoped. Like I said at the beginning,
01:21:50
there is a faith element to this for me which maybe overrides some of this stuff, but not all
01:21:58
of it. And again, I'm not in the situation where I can really say like, "Oh, this is what I would do."
01:22:02
It's way more difficult than that. But this is… I hate this chapter. This is the chapter where he
01:22:11
shares the story of how his dad died. And he obviously has a very close relationship with his
01:22:17
dad and he basically is very detailed. And all of the steps along the way to his father leaving.
01:22:25
And I think it's really sad. It's very emotional. It does raise a very powerful and
01:22:34
interesting question. He does call out in this chapter the fact that like… He's been talking
01:22:40
about, "We don't want to just keep people alive, but there's also the other side of this," which
01:22:44
is not necessarily great either. In fact, in the Netherlands, I believe, like one in 35 people
01:22:50
have an assisted suicide. Like, that's not the right answer either. So he kind of ends it as like,
01:22:56
there's these different ends of the spectrum. What we're shooting for is something in the middle,
01:23:01
but we shouldn't just say we want to keep the person alive. We shouldn't just say we want to
01:23:04
make them happy. But we have to consider all of the information when deciding what is best for the
01:23:11
patient. And by the way, this is really emotional for me too. So I don't know, by the end of this
01:23:16
chapter, you're just in tears. Is that fair to say? Yes. He takes you through the whole process of
01:23:24
his father's death. And he's a very good writer. He's very descriptive. And this is a very emotional
01:23:35
story for him. So he spells it out in a lot of detail. Yes, he talks about courage. He talks about
01:23:42
the courage to confront that you are dying and then the courage to act on it. He talks about how
01:23:50
we have this illusion of control. We feel like we have control over everything all the way up to the
01:23:56
end, but you really don't. You just kind of have to navigate your way through what happens.
01:24:05
Through all of that story, the bulk of the chapters about his father's story,
01:24:09
which means that when you're talking about courage here, he's telling you how they went through
01:24:16
theirs. Yep. Well, through their personal scenario and how his mom fought it.
01:24:22
How his siblings fought it to some degree. And what happened afterwards, what did they do
01:24:33
after his father died? And how did that help them bring closure? It's hard to read this. It really is
01:24:42
because you can't help but think, you know, what would I do in that situation? And you can't help but
01:24:49
wonder, like, if that were me, if I was Dr. Gawande's father in this situation, which was a little
01:24:57
confusing to some degree because his father was a doctor as well. So they would refer to him as
01:25:01
Dr. Gawande to. So it got a little confusing here and there. Right. Over that. But they did a lot
01:25:09
of things right. They did a few things wrong. They will tell you that. But that's what he's
01:25:14
getting at. You feel like you have control over the whole situation. But even though they had
01:25:21
everything done right, they were in the middle of hospice care. They felt like they had a good
01:25:25
handle on everything. Some things happened. You know, his dad made a decision. He was a doctor. So he
01:25:33
was always messing with his own medications. He decided to do something different with his
01:25:37
medications and it caused him to go into some form of shock and it scared his mom. So
01:25:45
she called the hot she called 911. Now, you know, that's what she did. Well, that ended up
01:25:52
causing more pain than it should have. Yeah. What she should have done in that case is called hospice
01:25:56
care and they could have worked through it and everything would have been fine, it seems. If it
01:26:00
didn't want to consider hospice because of the stigma attached to it. Yeah, they didn't want to
01:26:05
do all of that. So it was hard to make those decisions. They had had a lot of these difficult
01:26:13
conversations that we've been talking about. You know, if you're able to have X, Y, and Z, is it
01:26:17
worth continuing life or should we pull the plug? Not a fun conversation. Definitely a hard one to
01:26:22
have, but you have to have in this case the courage to have those conversations and act on it.
01:26:28
That's what he's talking about. And again, they didn't do everything right. They will tell you that
01:26:34
through his father's process. But what he's trying to do and I think he does a very good job
01:26:43
in his story is show just how messy it can be and how hard it can be and how much you feel like
01:26:51
you can control the situation and yet you can't. Yep. And that's what he's getting at is you have
01:26:57
to navigate your way through this in the moment and just make sure that you're constantly talking
01:27:04
about it instead of just making assumptions because how many times did they talk about the
01:27:09
conversations that you had to have and the person who was ill shares with the caretaker what they
01:27:17
would want in an end-of-life situation and it's completely different than what the caretaker was
01:27:24
expecting. Yeah. That just blew ice cream and football really. That's it. You don't ever watch
01:27:30
sports. Why does that? You know, that's what happens. And I think that's really important. It's
01:27:36
hard to get your head around it. It's an emotional process, but it's a vital process. Definitely.
01:27:44
And the last point here, the illusion of control. So there's really like two different
01:27:49
selves that he describes in this last chapter, the experiencing self who endures every moment
01:27:54
equally. And the remembering self who gives almost all the weight of judgment afterwards to two
01:28:00
points in time, the worst moment and the last one. So this kind of gets into maybe predictably
01:28:06
irrational territory or the art of thinking clearly where like you can't trust the way that
01:28:11
you're thinking about things. But the main takeaway here and really the thing that kind of struck me
01:28:17
is that no one ever has control, but we're not helpless either. So maybe rephrase that no one
01:28:23
ever has complete control. So there are things that you can do. There's things that you can do
01:28:27
to influence the quality of your life as you come to the end of your life. But it is something that
01:28:32
everybody deals with and there are no easy answers. And you need to ask the tough questions in order
01:28:37
to figure out what the right situation is for each individual. The last chapter we talked about
01:28:43
the old model where the patient comes to the physician and the physician just tries to fix him
01:28:47
or her. And Dr. Gawande proposes a new model where we figure out how to navigate the end of this
01:28:52
life together. Again, not a fun conversation to have, not a very uplifting read, but I'm very
01:28:57
glad that I read it. I really appreciate Dr. Gawande's perspective. And I feel like he's the
01:29:02
perfect person to have written this. Yeah, I don't know how well it would have come across from anyone
01:29:07
else. So I think it was perfectly done by him. So take his word for it, not ours.
01:29:12
There's that. So we've made our way through the book. You feel better now, Mike? I do.
01:29:19
Until this releases. And then people point out all the dumb things that I said.
01:29:24
Okay, action items. I have one here. Do you have anyone you want to add to this? No, no, I'm not
01:29:33
putting that action item on there. It's not happening for a while. I'm going to attempt to
01:29:38
start this conversation. You let me know how it goes. I don't know that I want to.
01:29:46
It's not one that I'm looking forward to at all. And it may not happen soon either.
01:29:52
This may be something that doesn't happen for a year because I'm not sure.
01:29:57
It's not a thing I think needs to happen over the phone. It means it has to happen in person.
01:30:03
And especially with my parents. Yeah, with my parents, I don't think we don't,
01:30:11
we're not able to connect face to face very often because of the distance between us.
01:30:15
My in-laws, we could probably have that conversation very quickly. But it's one that I at least want
01:30:22
to embark on starting. How do you want us to handle things? I know for example, my mother-in-law
01:30:32
has been telling us for years now, don't put me in a nursing home. I'm coming to live with you.
01:30:36
Like she's been telling us that for a while. So, okay, we've been joking about this for years now.
01:30:43
Let's talk about it. Let's be honest and figure it out. So, I want to at least start that.
01:30:49
Sure. Again, I don't know how it's going to go. I don't know how to report back on it
01:30:52
until it happens. And I may not remember to bring it up once it does happen. But I think it's
01:30:58
worthwhile. Yeah. So, I'm going to attempt it. You're a brave man, Joe Buleg. Yeah, we'll see.
01:31:03
All right. Yeah. No action items for me. I'm styling rating. I almost want to skip this part.
01:31:08
How do you rate a book about end of life care?
01:31:13
So, I'll rate it from a bookworm perspective. And that is based off of the entire history of
01:31:20
bookworm and why we started bookworm. Okay. And I will give this four stars because I feel like
01:31:27
the information that's provided here is great information. I find that there really isn't anything
01:31:32
actionable from this other than having that conversation. And even that's not something that's
01:31:37
going to happen in the next couple years for me. And so, when you think about like, why do we
01:31:43
read books and why do we have bookworm in the format that we have it? Why do we do the follow-up
01:31:48
every week stuff like that? Like, this book really doesn't fit. But it's a good book. I would
01:31:53
recommend that people read it. I was really challenged reading it. It was an emotional read.
01:31:57
It inspired me to go back and watch Patch Adams again. I found myself like really emotional in the
01:32:02
description of like the nursing homes and the assisted living and just deciding been in there.
01:32:08
Like, this is not happening for my parents. But I don't know. I mean, like, I don't know what you
01:32:14
can expect from this book other than having your perspective changed a little bit. I even think,
01:32:19
man's search for meaning was more actionable than someone. Which, obviously, that one is one of
01:32:26
my favorite books of all time. Yeah. This was a really difficult read. It was hard for me to get
01:32:31
through it. But I'm really glad that I read it. I'll just leave it at that. Sure. Well, you can
01:32:37
find excuses around it all you want. But I'm going to give it a 5.0. Which I don't think I've done for
01:32:41
a while. I have a lot of reasons for that. I had a hard time finding really any fault with it
01:32:48
from a book stance. Like, I feel like he covered at least every point around this topic that I
01:32:54
feel like I would want covered. And he did it in a very well thought out in a well-designed way.
01:33:00
You know, per conversations we've had in the past, I feel like the length of this was spot-on.
01:33:07
It's kind of long. But I feel like it needed to be long in this case. Which is kind of weird.
01:33:12
We usually say the other thing. Like, this is way too long. This should have been a blog post. Like,
01:33:16
no, this was almost 270 pages and it needed every one of them. I felt like as much as,
01:33:23
you know, I only have the one action item. It's about the only action item I feel like you could
01:33:28
get out of this. Right. From a broad perspective. I'm sure there's a lot of little stuff that you
01:33:34
could pull from it. But I do think that this is one, and I've recommended this already to a lot of
01:33:40
people. Especially in our church. And I continue to tell people to pick it up. I don't know that I
01:33:47
run across many people that I would say shouldn't read it. Just because I feel like it's been so
01:33:53
important as far as understanding. Because everyone's going to approach this topic at some point.
01:33:58
Sure. Whether it's with relatives, friends, yourself, everyone's going to approach this
01:34:04
at some point. So that means I feel you should have at least thought this through
01:34:12
and to some level or at least be aware of it. That's why I put it at the five. Oh, I think it's
01:34:17
well worth that. It's done very well. And I just, I loved reading it as much as it was hard to read.
01:34:24
I've been a long time since I've cried that much reading a book. The number of times I was reading
01:34:29
this and Becky, my wife would look at me and be like, "You're right over there? Yes, I'm fine.
01:34:34
Leave me alone." Just let me do this. So, yes. So there you go.
01:34:42
Well, I think Five-O is definitely, it's definitely you deserved. A tool or Dr. Gawande is a very,
01:34:52
very good writer. There is tons of personal story in here. There's tons of research. It
01:34:56
checks all the boxes for me, other than, "What am I going to do with this?" And if you were to say,
01:35:02
"Give me the five most influential books that you've ever read that I'm just getting into
01:35:06
productivity. Just getting into self-help because that's typically, I'm just going to go and say,
01:35:11
"That's typically where Bookworm resides." The average person who comes to Bookworm,
01:35:16
they're coming here as a productivity podcast for the most part.
01:35:20
So, looking at if that lends, what are the top five books that I should read?
01:35:24
This isn't going to be on the list, but that doesn't mean that it's not a phenomenal book.
01:35:27
It's totally going to be on that list. Well, think about it this way. A lot of the people
01:35:32
that listen to Bookworm do so because they want the cliff notes versions of the books.
01:35:37
If you listen to this podcast and you don't go read this book, you are a fool. You cannot,
01:35:43
like you said, this book is a perfect length. It's kind of long, but it needs every word that he
01:35:47
uses. I totally agree with that. This is not something that you can skip through.
01:35:52
You can't abbreviate this in any way, shape or form. It's just such a heavy topic. But because of
01:35:58
that, I kind of feel like it doesn't really fit, which is my only knock on this. I'm trying this
01:36:03
just to say, I'm putting it at 4.0 for those reasons, but I completely agree with your 5.0 rating.
01:36:10
And if this is the right thing for you at this season of your life, like absolutely, definitely,
01:36:15
this is the thing that you should pick up and read next. You won't be disappointed. Dr. Gawande,
01:36:19
like I said, he's a phenomenal writer. He's so good. Not just like it's interesting to read him,
01:36:25
which is how some of the books that we read, like Chris Bailey is a great writer because he
01:36:30
keeps you interested. Then there's people like Mahali who you can tell, they're just really,
01:36:34
really smart. Dr. Gawande is both. He's phenomenal. I would not hesitate to read another book by him,
01:36:44
even though this is maybe the first repeat. No, second repeat author we've had in Bookworm history.
01:36:48
Yeah. There's a couple we've done. Yeah. Cool, cool. All right. We can put this one on the shelf.
01:36:53
What's next, Mike? Put the tier-stained pages on my shelf. Yep. Go for it.
01:37:00
So the next one is my number one book of all time, I think, when we did the Bookworm draft.
01:37:05
Yes. And that is The One Thing by Gary Keller and Jay Popison. This one does not have any votes
01:37:10
in the Bookworm Club, but my wife read it recently. Sorry, everybody in the club, my wife's
01:37:15
saying I should go back and revisit this one. I totally agree with it.
01:37:19
For the most part, we are going to go off of those readings every once in a while. I'm going to pull
01:37:25
a Trump card though, and I feel like this is one. It's my favorite book of all time. We've got
01:37:29
to cover it for Bookworm. It's unbelievable that we haven't done it yet. All right, listeners.
01:37:33
So you heard it here. Mike's wife trumps you all. I'm sorry. I guess we're going to do the one thing
01:37:40
next then because of Rachel. Yep, you can blame her totally. I've not read it, so this will be good.
01:37:47
I should also say that I picked this one now because of my current situation.
01:37:52
Yeah, I wonder. I feel like this is the right thing at the right time. So selfishly, that's why.
01:37:59
Yeah, but also going back to the Bookworm library and catalog, I'm kind of ashamed that we don't
01:38:05
have one on the one thing. So this is an episode that I want to have in the catalog.
01:38:09
Got it. Well, following the one thing, I have selected Blink by Malcolm Gladwell.
01:38:16
Yes. I feel like Gladwell is one of these authors that people love or hate, it seems.
01:38:26
And I feel like we should at least enter that world to some degree. He's got a few books out.
01:38:33
I selected Blink partially because I already owned it. And partially because I like some of
01:38:40
the taglines and stuff that come with it, the power of thinking without thinking. So, I don't
01:38:45
know. I'm just kind of interested in that one specifically. So we'll dive into Gladwell a little
01:38:49
bit. Cool. Gap books. I've got one and there's a story behind this one, by the way. Oh, stories.
01:38:57
So I had a Skype call with a Bookworm listener who wanted to talk about the faithless productivity
01:39:07
stuff that I've got spinning up. And they recommended to me a book called Do More Better by Tim Chally's,
01:39:15
I believe it's how you say his name. It is a Christian perspective to productivity systems.
01:39:21
It is a short book. I started it. It's pretty interesting. And I am excited to get through the
01:39:27
rest of this. I just am like a chapter in, but it gets into a lot of the systems that Matt Perman
01:39:34
tried to address in what's best next, but it's a really short book. Forget how many pages it is.
01:39:40
Does it say on Amazon? It's little though. You could probably get through this in a couple of
01:39:45
hours if you just crank through it. But there's so much stuff in here that there's going to be a
01:39:50
pretty decent Mind Node file for this. Sure. Sure. Mind Node is now a part of set app, by the way.
01:39:57
I saw that. So go sign up for set app right now and then go sign up for my newsletter so you
01:40:01
can get the Mind Node file. No, those are PDFs. Yeah. A huge fan of set app. I've got a gap book
01:40:09
this time, Mike. I see that. Exciting. A place of my own by Michael Pollan. I'm
01:40:16
show a hand. Who knows Michael Pollan? I don't know if you raised your hand or not. I'm not raising
01:40:21
my hand. He has written, says his fourth, third. He's written three or four books. His other ones
01:40:30
that are more well known as the omnivores dilemma and in defense of food. So he's he's a journalist
01:40:36
of in the diet world, if you will. He's got another one too. I forget what it is. Cooked,
01:40:44
I think is what it is. Yeah. I've read all three of those. Yeah. So call me a Michael Pollan fan.
01:40:49
Anyway, this one came before all of those and it was the tagline on it is the architecture of
01:40:55
daydreams. He built like his own little room out in the woods so that he could do his writing and
01:41:02
reading. That's amazing. That's where he wrote one and a half of his books. So he goes through the
01:41:07
process. He's not a handyman at all. So he goes through the process of how did he learn architecture
01:41:12
and design and go about building this place, which sounded fascinating to me because I feel like I
01:41:16
want to build a place like this at some point. Thankfully, my wife doesn't listen to this podcast.
01:41:21
So she doesn't know that I'm plotting this. So there you go. All right. Cool. So if you want
01:41:29
to recommend a book, I promise I will look at your recommendations and pick one from the club next
01:41:33
time until Rachel Trump. Nope, not true. I'm going on the record right now. I'm going to pick a
01:41:42
listener recommendation for next time. So get your recommendations in. I was recording this,
01:41:46
by the way, I just recorded through the Bookworm Club. I got connected with Patrick from Knowledge
01:41:52
Without College podcast. We recorded that yesterday. So I don't know when that's going to go live,
01:41:56
but that was a fun conversation. And he said he's going to go recommend some books too. So you can
01:42:02
join Patrick, recommend your books at the at the Bookworm Club, which is club.bookworm.fm.
01:42:08
You can also get there via the website bookworm.fm/list. Just click the button to recommend a book.
01:42:14
And you will also see a list of all of the books that we have covered, including Amazon links to
01:42:21
buy them, which are affiliate links. So if you want to support the podcast, that is one of the ways
01:42:24
that you can do that. Another way you can support us is with iTunes reviews. We love reading these
01:42:29
things. They're fun. Yes, we do. I don't care if it's good or bad. I just like reading them. I feel
01:42:35
like I have to call out one by the way. WebGuy9402 gave it four stars is please add chapter bookmarks.
01:42:40
Great podcast, but I'd like to be able to skip all the follow ups and jump straight into the book
01:42:44
discussions, even moving through the book discussions with with chapters will be very helpful. And
01:42:50
since I started editing the podcast a couple of episodes ago, there are actually chapter bookmarks
01:42:56
in the episodes. I'm not sure if people have noticed that. So you can skip the follow up
01:43:01
by clicking the chapter button in your podcast player that supports it. I know not all of them do,
01:43:06
but I wanted to want to address that. So other people know that there are actually chapter bookmarks
01:43:11
in the most recent episodes. Why would you skip our follow up? Anyway, I just just gonna throw that
01:43:19
out there. Maybe there's sick of hearing about you and your meditation practices.
01:43:24
So here's a good thing to call out. We do read these reviews and sometimes we do act on what you
01:43:30
say. Yes, we do. I don't think I said quote unquote at all this episode. I was trying to think of a way
01:43:36
to use it right now. But there's some feedback we'll take and then we'll just do exactly what you
01:43:43
tell us not to do. But if you have good feedback, we would love to hear it or if it's just something
01:43:48
you want us to know. That's a really good way to let us know. Another way to jump into the
01:43:53
conversation around Bookworm is to just join the club club.bookworm.fm. Some fun conversations
01:43:58
around the episodes and stuff that happen out there. And if you want to share maybe your action
01:44:03
items and we can follow up with you, no one would skip that. They just wouldn't click it. So,
01:44:09
you know, you can share your action items on the club as well. If you're looking for some of the
01:44:13
accountability that Mike and I have through the show and if you don't have someone to do that with,
01:44:18
the club is a great place to do that. So club.bookworm.fm. Join the podcast book club.
01:44:24
Submit a review. Help us take down KCRW. And we will talk to you next time when we cover the one
01:44:29
thing by Gary Keller and Jay Popison.